Tuesday, October 3, 2017

THE COST OF CANCER

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You probably think from the title that this is going to be a post about how cancer has cost me my health, my peace of mind, my sanity, and so on.  But, it's actually going to be about the dollar amount, the bucks, the moolah, the funds, the dough, the bread that having cancer costs!

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I'm sure that each type of cancer has different costs because they all have different treatments.  Even in the realm of breast cancer, my costs may not be the same as someone else because their treatment was probably not exactly the same.  Some people make lots of trips to the hospital because of the body's reaction to their chemo but thankfully I did not have to do that so that reduces my cost versus someone who did have those visits.  
What I'm going to share with you is the amount, so far, that breast cancer has cost me.  

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I'm going to share two different totals with you and there's a good reason for that.  One total is the amount that was 'charged' and one is the amount that I was able to get it reduced to for being a 'self-pay' patient.  See, my family doesn't have traditional insurance.  We are part of a Christian medical sharing group that works on the basis of bearing one another's burdens.  It is considered 'self-pay' in the medical community but in actuality we submit our 'needs' and other members send us their 'share' for the month to pay those bills.  We also send our 'share' each month to a family's 'need'.  It's a great concept and we've been on it for years.  And I can tell you that in relation to my cancer, it was a God send.  Most people that go through cancer have deductibles and copays and the like.  But not with the medical sharing.  100% of my costs were covered under the plan we are in.  We didn't have to deal with the added burden of how to pay for medical bills on top of the treatments, worry, and stress that can come with such a diagnosis.  If you are tired of traditional insurance I encourage you to check out Christian medical sharing groups.  

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Now for the totals.  
The amount I have been charged so far for all services (this is doctors visits, prescriptions, surgery, chemo, radiation, etc, etc...) is $231,207.69 
The amount that I have paid so far for all of those services (because they give huge 'self-pay' discounts) is $137,886.47
WOW!! What a difference right?? And by the way, why does it have to cost so much to be sick??  I mean, here you are getting a diagnosis like that and on top of it, here's a huge bill for you!!  Have a nice day!

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Right now, I owe nothing.  All of those bills have been paid.  I do say so far, because trust me, when you have cancer the doctor visits and check-ups never end.  They want to 'keep a check on everything' on a regular basis.  And you are on prescriptions for quite some time too, or supplements because of the things your body has been depleted of.  So that's why I say so far.  


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So......what's the cost of cancer??  Alot!!  You can't afford to get cancer, literally!!! And I am sure those who have copays and deductibles struggle to pay those bills for years after their cancer treatments.  
YAY!! 
You beat cancer, 
here's your bill.  
Have a nice day!! 



Friday, September 23, 2016

MAGIC RASH RELIEF!!

Wow, it has been a while since I've added to my blog. Since my last post I've completed my radiation and had a few follow up appointments.  So far so good!!  My body and my life are getting back to a little more normal, whatever that is :-)!!

My post today isn't going to be about breast cancer.  I know some of you will find that as a relief :-)!  

It's almost hunting season here in the south and that means all the male species in these parts are preparing for it by getting their hunting licenses, guns, deer stands, and the like ready! 

My husband and son recently went out to do just that.  It's not uncommon that while they are in the woods my son would contract some type of rash.  He's prone to be allergic and they come across poison ivy, oak, sumac and other rash causing things a lot.  

Like most people, we have a variety of things in the medicine cabinet to treat such rashes.  We have sprays and ointments and creams and lotions that are supposed to dry up the rash and help with the itching.  It seems to me like most of those things take a long time to actually clear up the rash but they will help with the symptoms for a time.  

My son's rash was on his arm (and spreading to his legs a little) so it was exposed (being as it's still short sleeve and shorts weather here), and I wanted to clear it up quickly so it didn't become an issue for others catching it and so school didn't become an issue.
 
                                        this is not my son's arm, but similar rash

I did what any savvy mom would do, I googled the best remedies for poison ivy rash.  (That is what ya'll do right???)  I came across several things, of course, that claimed to work, but decided on trying a particular method because the claim was so strong, the products were on hand, and it was easy.  

And guess what????  It worked, like MAGIC!!!  Now, I don't believe in magic, but you know what I mean!  It worked REALLY well!!  Like nothing I had ever used before.  After following the directions, which I will list for you below, the rash quit bothering my son and started drying up overnight.  The next morning there was such a huge difference! It never itched again and cleared up quickly.

Here's what you need:
 Gojo hand cleaner (my husband uses it to remove grease and such from his hands after working on dirty things)
coconut oil (the kind I used you buy in a jar on the baking aisle where other oils are - any kind should be fine)

Here's what you do:
                 1.  apply some coconut oil to the affected area (if you aren't familiar with using coconut oil, then know that it will 'melt' when you rub it in)
                 2.  allow it to pull the 'pus' from the rash area for a few minutes (10-15)
                 3.  scrub the area with Gojo to remove the oils and any remaining 'pus' from the rash. rinse well. pat dry. 
                 4.  apply a thin layer of coconut oil to moisturize area after it is completely dry.
                 5.  can repeat once or twice a day while needed, but you should see a big difference within a day.  

Some additional notes:
                 - after the first application we quit putting the coconut oil on first and letting it sit.  we just washed the area once a day with the gojo and applied coconut oil after for a couple more days.  
                    -then we switched to just coconut oil for a few days to moisturize the area since the gojo will dry the area out so well. 

Here's how it works:
                   The coconut oil has a 'pulling' quality and that first application when the rash is at it's worst is when it pulls to the surface the 'pus' (or whatever you want to call it) that is causing all the trouble. (it's actually an 'oil' from the plant that causes the problem but don't want to get it mixed up with the coconut oil so calling it 'pus')
                   Cleaning with the gojo removes what the coconut oil pulls out and any remaining irritants.  
                    Applying the coconut oil after the gojo cleaning helps to moisturize the area and continue to work on the rash.  

I hope if any of you try this you will have the same success we did.  I will be using this process from now on whenever we get a rash such as this.  It worked so fast and so well.  My son had a friend over the night we did this and when he saw his arm the next day he was amazed at how different it looked.  

Thanks for reading and stay away from poison!

Monday, July 11, 2016

THE THINGS THEY KNOW

When I was first diagnosed with cancer, my main concern was and has continued to be my children.  I didn't want them to be scared or worried.  I didn't want them to have to see me sick and not able to do for them as I usually do:  cooking their meals, washing their clothes, tucking them in, playing games with them, laughing with them, reading to them, etc...  I didn't want them to lose their mom and have to grow up without me.  
God has blessed me so much and put all of these concerns to rest.  We've been able to handle this without scaring them and causing them to be worried.  I have been able to do for them as I always have in most cases, and cancer isn't going to take me out of this world right now. 
 


But, that doesn't mean that my kids have come through 'mom having cancer' without any changes.  They have seen, heard, and learned things over the past few months that I wish they hadn't had to.  They have seen my surgery wound (and now scars).  They have seen my fatigue and seen my hair get thinner and thinner.  They have seen my radiation 'markers' and the burns I now have.   They have heard me describe things to family and friends, heard the countdown of weeks for treatment.  They've learned words like 'chemo' and 'radiation' and know a lot more about what that means than I want them to.  The words flow from their mouths easily, like they've been a part of their language forever.  The first time I realized it, it made me sad.  That these things had come into my kids lives and become so routine for them.  

The good thing is that along the way, my kids have also seen, heard, and learned some good things.  They've seen my church family lifting me up in prayer, they've seen the cards that come in the mail showing concern for our family, they've seen family and friends come and bring food and gifts, they've seen their mom and dad go through this with a smile and a trust in God's will.  They've seen the love and support from those who love us.  They've heard the many, many people come up to us anywhere we may be to let us know they are praying for us, they've heard me and their dad share the amazing ways God has blessed us through this trial.  They've learned that cancer is a bad thing, but that God is so good to us, we don't have to be afraid of it.  They've learned that there are a multitude of people that love us and are there when we need them.  They've learned that God hears and answers prayers.  

 
Like almost every mom I know, I will admit that when my children came into my life, they became my world.  The love I have for them is like nothing else I can describe.  I want the very best for them and would gladly shield them from every bad thing in this world if only I could.  That is why they were my first and main concern when I found out I had cancer.  That is why the impact on them was what I was most scared about.  
Thankfully, like every other aspect of my journey through cancer, God has been right there holding them up and keeping those beautiful smiles on their faces.  He answered my deepest, most important prayers to Him, the ones concerning my children.  I can never thank Him enough.  
There are things my kids know now, good and bad, that will be a part of shaping them into who they will be and I thank God I will be here to see the results!!  

Monday, June 20, 2016

LOOK YA'LL, UNDERARM HAIR!!

Ok, so...it might be kind of strange to get excited about underarm hair, but I was.  I noticed it in the shower and I announced it to my family when I got out.  See, I haven't had any hair there in quite a while.  One good side effect of my chemo is that I hadn't had to shave under my arms or my legs in  several weeks.  But, it's coming back.  Not too much yet, but it IS coming back.
That last round of chemo I had did a number on my hair, all over!  The hair on my head got really, really thin and I ended up cutting it much shorter.  It's growing back now too.  I've been wearing more hats lately at times and I honestly don't know which is worse:  having super thin hair and having people looking at it or wearing a hat to cover it.  It doesn't necessarily bother me for people to look.
It's just that I feel like I need to be wearing a sign explaining why my hair looks so pitiful so people will know I don't usually go around with it like that :-)
Wearing hats doesn't really bother me either and it's something I do in the summertime quite a bit anyway.  But it seems to bring attention and that pitiful look you get when people can tell you've been fighting cancer.  
I have missed my eyebrows and eyelashes.  (Yes, they go too!)  They are growing back as well, which makes the eyes very itchy!!!  I've been drawing my eyebrows on but there's not much I can do about the lashes except wear falsies and no thank you!  And hey, if you've got to draw your brows on, then you may as well give them a good arch!
I started radiation a couple weeks ago.  That has been a bit of an inconvenience because I have to drive about 45 minutes one way to get there and then the radiation doesn't last but about 20 minutes, in and out.  So far, it hasn't bothered me too bad.  I started week 3 today.  I never knew it but when you take radiation they have to draw all over you and use these very sticky stickers and even permanent tattoos (just tiny dots) to help line you up and aim the radiation at the right spot each time.




With radiation, like chemo, you tend to meet the same people lots of days because you're on the same schedule.  I've gotten the chance to meet some very nice people and hear some of their stories.  
A gentleman I sat next to the other day was eating peanuts.  He offered me some and we started up a conversation.  Turns out he is 80 years old and has had prostate cancer for a while, and they just recently told him he has lung cancer.  He's getting his treatments but he told me he just didn't believe he had it because he doesn't FEEL sick.  

I asked him if they had told him that he was supposed to feel sick and they hadn't.  There are so many emotions that go along with having cancer.  Denial is one of the first. 
It's funny, before you find out you have it and you hear of others having it, it seems like the worst thing in the world. You feel so sorry for the people you hear who have it and you just can't fathom yourself having it.  As I've said before, it's the diagnosis noone wants to hear.

But, I can tell you, there are people fighting it off and doing a great job of it!  There are people who are pressing on through their treatments and carrying on with their life after treatment.  I see it all the time.  I know there are a lot of people who pass from it daily too.  Don't get me wrong, I know how serious and life-threatening it is.  

But, if you are told you have cancer or someone you know has it, don't assume it's a death sentence. Don't bow your head in defeat and think your time is up.  It may be.  It happens.  But, please don't think that just because you've got cancer, you're going to die.  People are fighting it and they are living to tell about it!  

I know, because I'm one of them!




Wednesday, May 18, 2016

HAPPY LAST CHEMO!!!

I recently finished my chemo!! YAY ME!!!  As I've posted before, I did not suffer from lots of the same horrible side effects that some chemo patients do.  I did have side effects, but not severe.  I know that's because I had so many people praying for me and that God shone down on me during this.  I thank Him for that.
The place where I took my chemo makes it a celebration when you complete your treatments.  You ring a bell and everyone claps and cheers and tears are shed.  You get a ribbon corresponding to your cancer 'color' and you get to write something on it and put it on their celebration tree.  They give you a certificate and make a big fuss.  I think that's very neat because it is something to be celebrated!!
My family also surprised me with a party to celebrate my last chemo.  It was so nice to have the ones who have supported me through this there to celebrate the occasion with me.


Unfortunately, my hair has continued to come out quite a lot and it is getting harder and harder to make it look like there's enough there to work with.  A big question for folks is TO SHAVE OR NOT TO SHAVE!?!?  I haven't shaved my head.  I had said from the beginning that if I developed bald spots I would, but so far it is just VERY, VERY thin.  Some days I want to shave it because of all the hair that falls off all over the place, but hopefully it will thicken up now.
Me with my certificate of completion! Hair is soooo thin, but I'm trying to mask it!
Before chemo...see that head FULL of thick curls!!

So, chemo is over! NOW WHAT?  some may ask. I will continue to go for antibody treatments every 3 weeks for another 9 months.  And soon,  I will start radiation.  That will last 6 weeks.  It's a right good ways from my home too, so I'm dreading the back and forth everyday.  I did ask my doctor how would we know the chemo did it's job.  But, there is no magic test they can give to let you know it worked.  You will know it worked when you don't develop cancer again.
I went this week for one of my pre-radiation appointments and as I type this I sit with marker drawings all over my cancerous area and tape that is supposed to keep those marks from washing away.  Turns out, they make a mold of you to do the radiation so you can be sure to be in the same position each time.  They really do try to aim the radiation just where it needs to be, which is a good thing.  And of course, there are several things I can't do and others I have to do while going through it.  Things dealing with deodorants, soaps, lotions, swimming, being in the sun, shaving, and more.  That swimming and sun thing should be fun since we are entering summer soon!
All in all, I can't complain. And it honestly doesn't do any good anyway.  Before my diagnosis, cancer was a big, scary word that I feared hearing.  And there is good reason for that. Everyday you hear of people being diagnosed and often hear of people dying with it.  It is a word that I liken to other words that have defined eras of time, like AIDS.  There was a time when that word was so prevalent in our lives.  It was what was talked about, what we heard about, what we feared.  It was attacking people and there seemed to be no way to control it.
That word, AIDS, like other words in different eras of time, has diminished quite a lot.  Things are different now. There seems to be a decline in cases and deaths related to it. People who get it aren't doomed as they used to be and many go on to live long lives after diagnosis.  We never would have thought it back when it was in the forefront, though.
I hope cancer is the next word that gets phased out of our everyday speak.  I pray they are able to treat it so effectively that to get it doesn't seem a death sentence.  I am fighting it and it isn't as scary to me as it was at one time.  I've seen, in my case, that it was removed, I'm being treated to prevent it's recurrence, and my prognosis is very good.  It hasn't been a death sentence for me.
A pain in the butt, YES!!!  But, not a death sentence.

Wednesday, April 13, 2016

Chemo and Colds and "You look good"

I've had a cold for a couple weeks now and as it turns out, colds and chemo don't play nicely together.  The chemo you take attacks the bad cells, but it also attacks 3 types of good cells that are pretty important.  One is the white blood cells, which help you fight infection, another is the red blood cells, which carry oxygen, and lastly is the platelets, which do their clotting thing. 
Since your body is being reduced of it's ability to fight infection, getting sick with even a common cold can cause havoc.  They put me on antibiotics, of course, because it can quickly turn into something else when your body can't fight it off as well.  But, I tell you, it got me down worse than a cold under normal circumstances.  I'm still fighting a few minor symptoms and it started about 2 weeks ago.  
Something I've noticed a lot lately is that when I see people I know (who know I am going through chemo) they always say the same thing, "Well, you look good!" 
I suppose I should take it as a compliment, and I do try.  But there's always that sense that what they really mean is "I expected you to look terrible but you don't", "I expected you to be skin and bones and bald, but you aren't"!!
And I do understand.  When you think of someone going through chemo you don't picture a woman with her hair done and her makeup on going about her day like nothing is wrong. 
I would say that most people, if they don't know me or what I'm going through, would look at me, out and about, and not know that I'm preparing to take my 9th round of chemo this week.  I consider it a good thing.  I hope that the face of cancer and chemo will change (as it is starting to) and that people who are going through it don't have to feel and look so sick.
Most days, I do feel well. But there are things going on that others can't see. My skin is not the same as it was and I would say I only have about 1/4 of my hair left.  My taste buds are affected and things don't always taste good when they should.  I am more tired than I would normally be and some days it seems like I just can't get enough sleep.  I ache from the chemo, because it causes aches in the joints.  I know these things are going on but not everyone can see them.  
So, sometimes when people say "Well, you look good!" with that sound of surprise in their voice, I may not be feeling very good.  But I don't complain too much because I see others at chemo who are going through so much more.  I am truly blessed to have had my cancer taken care of rather quickly and that the treatments I'm going through now are being so kind to my body.  
I should have started a picture diary of my progression through this. It would be neat to look at before and after photos and see the real, visible changes that having cancer and going through chemo will make on your appearance.  
But, on second thought, I think I'll just go with what everyone else is saying and look in the mirror today and just say 
"WELL, YOU LOOK GOOD!"  :-)

Friday, March 18, 2016

MR. BROWN, THE SKINNY MAN, AND A HAIRY BATHROOM

I had my 5th chemo treatment today. I have been very blessed to be one of those who isn't having major side effects. A few minor things that are not bad at all to deal with. Thank God for people who are praying for me because I know it's helping!!



When you get chemo you meet a lot of different people. Lots of nurses, of course, but also lots of other chemo patients and their family members who come with them. I love the people where I go for chemo. The nurses are all wonderful and Tommy and I love to talk to the other patients.  We are not shy about striking up conversations with people we don't know and often times they start the conversation before we can.

Some of the people I have met have really made a big impression on me and I leave with them heavy on my heart and mind.  I pray for them and several have told me they are praying for me also. 

Recently I met Mr. Brown.  In talking, we found out that he is from the same city we live in. He is a Christian man and works very hard spreading the word of God and encouraging others to serve God.  I really like Mr. Brown.  He is such a sweet man and I was blessed to see him just today and he is doing well.  (He was having his very first chemo when I met him last week.)  What stuck with me about Mr. Brown is something he told me when his family had stepped out to get breakfast.  

He told me that, even though he couldn't say it in front of his family because they didn't want to hear it, that he is ready to go if this is his time.  He's confident of his eternal home in heaven and that makes it so much easier. He said his only regret if this is his time is that he still wanted the opportunity to help others come to know God and find salvation in Him. He just feels like he has more work to do here.  

The reason this struck me so hard is that I can honestly say I haven't once thought of those I needed to witness to since I found out I had cancer. My thoughts have been on my kids, my husband, my family, my church, myself.  How would my kids get through this?  How hard would it be on Tommy?  Who would do everything I do for the church if I couldn't?  How would chemo make me feel????  Not once have I thought of helping others come to know the God that is so very good to me!!

I commend Mr. Brown so much because his thoughts have, somewhere along the way, turned to those who need to know God. God Bless Mr. Brown and I pray his treatments will be kind to him. 

Today I met a man and his wife.  I didn't get their names but he was so sickly looking. So very skinny and he was there getting fluids because he's so dehydrated.  He has no appetite and won't eat or drink because it makes him so very sick, even though he's on 3 different anti-nausea medicines.  I was so saddened by this and I talked to his wife right much because he slept most of the time.  I am praying hard for this skinny man today.  It was tough to see that he is having such a hard time with his chemo, while I sit next to him, feeling very well indeed.  

I have learned that every person's situation differs based on their type of cancer and treatment, so it's not like the skinny man is getting the same treatments as me.  But my heart hurts for him because of what he is going through. He did perk up just a bit today after getting some fluids and ended up eating a bit of apple sauce.  I pray his situation will improve.   




One of the minor side effects I'm having this past week is my hair is thinning.  It's not very noticeable to those who see me, but it is to me.  Every time I brush or comb my hair I pull out handfuls and have to sweep lots up from the floor and off other surfaces.  I can feel that it's thinning and it doesn't take as much shampoo to wash my hair.  

As I've told lots of people, I'm not going to whine (too much) about this.  Especially after meeting the skinny man today I won't complain about my minor situation.  

I can still feel well with thin hair or a bald head.  Thank God!!